Dear all,
In this post, we are sharing few reports for your reference. Most of the terms are actually aliens to us; except to doctors of course. Important information from each picture are all listed underneath.
Biopsy result: 09th Aug 2011
Discharged summary: 19th Aug 2011
In this post, we are sharing few reports for your reference. Most of the terms are actually aliens to us; except to doctors of course. Important information from each picture are all listed underneath.
Discharge summary: 08th Aug 2011
- Biopsy date: 03rd Aug 2011
- Discharged date: 08th Aug 2011
- Tumor size: 8.4cm x 5.9cm x 6.4cm **from MRI done on 30th Jul 2011.
Biopsy result: 09th Aug 2011
- Biopsy date: 03rd Aug 2011
- Diagnosis: "malignant tumor" and "probably pleomorphic MFH"
- Malignant tumor: A tumor that is malignant and tends to spread to other parts of the body
- Malignancy: The tendency of a medical condition, especially tumors, to become progressively worse and to potentially result in death
- Pleomorphism: In microbiology, is the ability of some bacteria to alter their shape or size in response to environmental conditions
- MFH: malignant fibrous histiocytoma
Discharged summary: 19th Aug 2011
- Operation date: 16th Aug 2011
- Discharged date: 19th Aug 2011
- Actual tumor size: 10cm x 7cm x 6.5cm
- Removed margin: 14.5cm x 12cm x 9.5cm
- Final finding: Malignant fibrous histiocytoma (MFH), pleomorphic type
- Grade: 3 (Poorly differentiated - high grade). The cells and tissue of Grade 3 and Grade 4 tumors do not look like normal cells and tissue. Grade 3 and Grade 4 tumors tend to grow rapidly and spread faster than tumors with a lower grade.
- Stage: **we didn't know**
- What were in our head and our initial actions?
- OK, it's cancer. It's a type of sarcoma.
- The tumor was removed, insyaAllah (if Allah permits) there would be no recurrence and would not spread to other spots.
- Hubby since then is banned from taking red meat, seafood and milk.
- Hubby started taking apricot seed and fresh sour-soap juice.
- We did not care about the stage. For us, regardless of the stage, if aggressive treatments were needed, then we would go for it.
- What were MY mistakes?
- I DID NOT properly digest the final lab report.
- I MISSED/OVERLOOKED on the grading information. ** I got to know hubby's initial grade while writing this post :'( **
- I SELDOM asked any questions to doctors.
- I only knew MFH as malignant fibrous histiocytoma. I knew that it was soft tissue cancer; but didn't really look into the details.
- We relied 100% on doctors' advice and plans. Hubby went for regular check ups with orthopedic surgeon and oncologist. And hubby did all scans (MRI/CT/bones) scheduled by his doctors.
Discharged summary: 08th Mar 2012
- Biopsy date: 07th Mar 2012
- Finding: normal liquid **I have yet to search for the lab report**
Lessons learnt:
- Grading is MORE IMPORTANT than the stage. The grade will actually tell you how aggressive the cancer cells are.
- Read, go through and DIGEST all reports (lab reports, discharged summary, refer letters, xrays/scans instructions).
- Keep on asking questions (A LOT) to doctors. DO NOT BE AFRAID.
- Keep on looking/googling/searching for latest modern treatments as alternative for typical conservative treatments.
- Be more observant; alert on patient's health conditions (regular fever, cough, etc).
- Do not rely 100% on conservative treatments. Start taking supplements to boost up the immune system IMMEDIATELY. **To which, we didn't. No point of regretting our past mistakes. We look forward and started correcting what we did wrong at the beginning**
Plenty enough? Overloaded with information? Not to let everybody dozes off; let's keep this post up to here. Wait for our next posts which will be more interesting (hopefully). We will share our stories on:
- When did we know hubby's cancer spread to his lung?
- What was the first action?
- How did we cope?
Cheers,
Intan & Naim
Shah Alam
26-Nov-2013
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