Tuesday, 26 November 2013

Medical reports from the past 2 years...

Dear all,

In this post, we are sharing few reports for your reference. Most of the terms are actually aliens to us; except to doctors of course. Important information from each picture are all listed underneath.

Discharge summary: 08th Aug 2011

  • Biopsy date: 03rd Aug 2011
  • Discharged date: 08th Aug 2011
  • Tumor size: 8.4cm x 5.9cm x 6.4cm **from MRI done on 30th Jul 2011.

 Biopsy result: 09th Aug 2011

  • Biopsy date: 03rd Aug 2011
  • Diagnosis: "malignant tumor" and "probably pleomorphic MFH"
  • Malignant tumor: A tumor that is malignant and tends to spread to other parts of the body
  • Malignancy: The tendency of a medical condition, especially tumors, to become progressively worse and to potentially result in death
  • Pleomorphism: In microbiology, is the ability of some bacteria to alter their shape or size in response to environmental conditions
  • MFH: malignant fibrous histiocytoma

Discharged summary: 19th Aug 2011

  •  Operation date: 16th Aug 2011
  •  Discharged date: 19th Aug 2011

  • Actual tumor size: 10cm x 7cm x 6.5cm
  • Removed margin: 14.5cm x 12cm x 9.5cm
  • Final finding: Malignant fibrous histiocytoma (MFH), pleomorphic type
  • Grade: 3 (Poorly differentiated - high grade). The cells and tissue of Grade 3 and Grade 4 tumors do not look like normal cells and tissue. Grade 3 and Grade 4 tumors tend to grow rapidly and spread faster than tumors with a lower grade.
  • Stage: **we didn't know**
  • What were in our head and our initial actions?
    • OK, it's cancer. It's a type of sarcoma.
    • The tumor was removed, insyaAllah (if Allah permits) there would be no recurrence and would not spread to other spots.
    • Hubby since then is banned from taking red meat, seafood and milk.
    • Hubby started taking apricot seed and fresh sour-soap juice.
    • We did not care about the stage. For us, regardless of the stage, if aggressive treatments were needed, then we would go for it.
  • What were MY mistakes? 
    • I DID NOT properly digest the final lab report.
    • I MISSED/OVERLOOKED on the grading information. ** I got to know hubby's initial grade while writing this post :'( **
    • I SELDOM asked any questions to doctors.
    • I only knew MFH as malignant fibrous histiocytoma. I knew that it was soft tissue cancer; but didn't really look into the details. 
    • We relied 100% on doctors' advice and plans. Hubby went for regular check ups with orthopedic surgeon and oncologist. And hubby did all scans (MRI/CT/bones) scheduled by his doctors.

Discharged summary: 08th Mar 2012

  • Biopsy date: 07th Mar 2012
  • Finding: normal liquid **I have yet to search for the lab report**
Lessons learnt:
  1. Grading is MORE IMPORTANT than the stage. The grade will actually tell you how aggressive the cancer cells are.
  2. Read, go through and DIGEST all reports (lab reports, discharged summary, refer letters, xrays/scans instructions).
  3. Keep on asking questions (A LOT) to doctors. DO NOT BE AFRAID.
  4. Keep on looking/googling/searching for latest modern treatments as alternative for typical conservative treatments.
  5. Be more observant; alert on patient's health conditions (regular fever, cough, etc).
  6. Do not rely 100% on conservative treatments. Start taking supplements to boost up the immune system IMMEDIATELY. **To which, we didn't. No point of regretting our past mistakes. We look forward and started correcting what we did wrong at the beginning**
Plenty enough? Overloaded with information? Not to let everybody dozes off; let's keep this post up to here. Wait for our next posts which will be more interesting (hopefully). We will share our stories on:
  • When did we know hubby's cancer spread to his lung?
  • What was the first action?
  • How did we cope?
Till then... take care!!!
Intan & Naim
Shah Alam

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